I've been what's known as a lurker for the past few months, reading the wealth of material to be found on all the myriad blogs that there are out there. (Bit pejorative that term lurker don't you think?) Anyway I've decided to join the fray and contribute some of my own thoughts and experiences on life with a rare blood disorder. Waldenstrom's Macroglobulinaemia. That's what it's called. That's what I've got. And they can't cure it.
It's a NHL or Non Hodgkins Lymphoma which is cancer of the lymphatic system. There'll be more on what having it actually involves in subsequent posts. Suffice to say that I've had the chemotherapy - with more in the pipeline - and the possibility of a bone marrow transplant (or autologous stem-cell transplant to be precise) to look forward to; so there's plenty to talk about and plenty of treatment related issues to get stuck into. Should be fun!
Tuesday, 20 February 2007
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