Monday, 15 October 2007

Waiting


...and so the condemned man waits for the punishment to begin. Because WM is such a sluggish disease (I believe indolent is the technical term) this march towards another set of treatment seems interminable. Dates have been set and diagnostic tests and scans arranged, I've had a leaving lunch with my friends from work and a good luck curry with my friends from St Albans; all the various bits and pieces have slotted into place, and still I really don't feel ill in the slightest. So all there is to do now is to wait for it to begin. And doesn't time run ever so slowly when you're waiting, even bizarrely when you don't want the thing for which you're waiting to arrive?

Thursday, 4 October 2007

For the CHOP


There's been an inexorable slide towards this moment. I knew it was going to happen but somehow that doesn't make it any easier to take. I've got to endure another 6 months of chemotherapy and this time I'm for the CHOP, or to be more specific R-CHOP. Last time around I only had to take the one drug, Fludarabine in tablet form. This time it's the full- go to hospital and have the treatment through a needle (oh yes one of those again...) - deal. And it's not just the one drug this time but an exquisite combination of nasties.

C - Cyclophoshamide (causes hair loss and infertility)
H - Hydroxydoxorubicin (hair loss and heart toxicity)
O - Oncovin (aka Vincristine...I'm not having this because it causes peripheral neuropathy)
P - Prednisone ( A steroid which can cause mood swings, water retention and kill bones)
R - Rituximab (imunotherapeutic agent; not chemo. Can kill during first infusion.)

lovely. I can't wait. It's a three week cycle with the CH and R going in on day 1 and the P in tablet form for the next week and we then start the whole thing again on day 21. They want to do between 6 and 8 of these cycles depending on how it goes. The most difficult thing for me to get my head round is the fact that I don't feel at all ill. The only symptoms I have are slight breathlessness when going up stairs and dizzyness when I get up too quickly out of a chair, both of these due to anaemia. I chart this cancer through numbers and graphs on a sheet of paper, and the numbers say start treatment. So in November I say goodbye to my colleagues at work for another 6 months and prepare to feel like shit. It had better be worth it.